Small changes are happening. She is slightly more awake now and moving her eyes towards people making large movements and shadows. She is looking towards a bunch of balloons that her boyfriend bought for her for the end of her bed. She is still not doing anything to command.
There is now a set of daily activities that Helen has to do such as ensuring that her hands and feet are massaged every day, listening to music, watching a DVD, stretching her arms and hands, making fist shapes with her hands, having different tastes such as orange juice during mouth care and touching her own face and lips with her hands. She has a list pinned up and when someone does it, they sign.
She has had her PEG fitted now. Everything went well and she is being feed through it and having her meds. Her bowels aren't any better yet!! She is being reviewed by the gastro-enterology team to see if there is something they have missed, some other underlying condition or whether it is just the feed causing it. If it is just the feed, then they can increase her dose of loperamide.
Her right arm is very stiff and they are talking about the possibility of her having a Botox injection in it. Her diabetes is slightly more under control but her blood sugars are still up and down. They have tweaked her sliding scale yet again . And also her feeding regime. She was vomiting every time the physios got her up so she is off the feed for 4 hours in the morning rather than overnight. She has had a PICC put in her arm because it was becoming increasingly difficult to cannulate her.
She is not going to Glenside now because they failed their last CQC inspection so our local PCT won't fund that facility. She is now going to Holy Cross in Surrey. She has to be assessed again! So once again we are waiting in limbo until they contact us to visit.