Got the news today that funding from the PCT for Holy Cross has been approved. And that Holy Cross have definitely accepted her, when they get a room. However, the physio's at the hospital have got to contact the wheelchair services at our PCT to assess because they are a different PCT and they cannot do it. The joys of working cross-county!!
She has been seen by orthotics today and been measured for new splints and a neck brace/collar.
She had a proper pampering session today. Her cousin came up from Portsmouth. She and Helen's best friend did her finger and toe nails. They were only allowed to do clear varnish on fingers but the toes are multi coloured and glittery!! I think the nurses were quite jealous.
Helen has had her flexi sig and that showed nothing abnormal. She has got to have a faecal elastase test (?). Something to do with her pancreas function.