I almost feel that this thread needs to be moved to progress stories now - it's not so much of a new story now
She has another urine infection (pseudomonas). Another catheter change.
Last week I was concerned about Helen's head becoming more "rounded". I asked the nursing staff whether it was a build up of CSF again and was told it probably wasn't. I was told that there would be more signs like Helen being agitated or combative (even though she can't actually move).
I asked the neuro consultant who was looking at her botox'd arm. He looked at her head and seemed rather confused. He seemed to think that she had had a small craniotomy and had fluid under the skin. He also thought that she had another scan since she had been at Basingstoke. I said she hadn't. He looked through her notes and she hadn't had one since she was in John Radcliffe.
At the weekend (Saturday, my birthday) we visited Helen. She was really sleepy, verging on unconscious type sleepy. She barely woke even when she was moved. I expressed my concern again that she was so sleepy. She did wake up briefly before we left.
I am visiting my mum in Kings Lynn for a couple of days. This morning I got a call form her neuro consultant saying that the nursing team had expressed some concerns about Helen!! They said she was being taken for a CT scan this morning. They said that she could either have an infection in her brain or be developing hydrocephalus.
I got a call back this evening saying that she was being moved back to John Radcliffe within 24 hours to have a shunt fitted. I don't know how long she will be in there or whether she will be moved back to Basingstoke afterwards.
Any advice on shunts would be greatly appreciated. It never rains but it pours